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Friday, September 3, 2010


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Tapering Of Prednisone And My Own Prednisone Battle

Posted by Lew on September 1, 2010

Hi and thanks so much for returning to my blog. RSS feed. Thanks for visiting!

Hi there everyone.

Tapering off of Prednisone is a pretty complicated subject in my opinion because of some of the different ways of doing it.

Just the other day I received something from someone who may no longer be  a Facebook member as to an article that she had found on tapering ( weaning ) off of Prednisone…

I read this article last week and found it interesting so am passing along.  I know many of us are on a maintenance dose of Prednisone and are okay with this but for those that would like to be off of it I think this way of tapering may make it possible.  I am down to 3 mg now and the way I did it was like this:

- Above 5 mg I would drop by 2.5 mg when my body completely adjusted to the change in dose.  Sometimes this would take over a month but I wouldn’t budge until I felt one hundred percent back to normal.  Meaning, I had no night sweats, no fevers, no need for allergy pills, no need for TUMS, no pain in my joints, no muscle pain, no numbness, no mucus, etc. etc.  Long battle but my dose did get lower with time.

WAIT! There is more to read… read on »

Husband Fights Extradition By Mentioning Wife Has Churg Strauss

Posted by Lew on August 19, 2010

Okay, this is not really a piece that has a Churg Strauss focus…but I just can’t help adding my two cents here..even worse I’m probably going to play devil’s advocate with this one.

Apparently, a Mr. Christopher Tappin, 63, from Orpington is in a bit of trouble. Tappin has been accused of selling arms to Iran.

In about two weeks from now, he is going to have to face an extradition hearing in which his fate will be decided as to whether he will be have to come to the US to face charges.

WAIT! There is more to read… read on »

Churg Strauss: It’s My Time To Take Action!

Posted by Lew on August 17, 2010

Evening everyone!

Ever feel like your a hamster and your stuck on that Habitrail treadmill that you’ve seen in your local Petsmart pet store? Your wondering in the back of your mind just how did you get there, and more importantly…how do I get off?

I have a one sentence answer for you…

You Have To Take Action!

I know, it’s a pretty bold statement to make…and yes I realize that this is a concept that for a lot of us is just easier said then done.

But if your going to get off that treadmill, you have to take that first step…or in my case ” LEAP “….check out my latest video below… WAIT! There is more to read… read on »

My Skype Phone Interview With Keith From Australia

Posted by Lew on August 11, 2010

Hey there everyone and good evening.

Check out my latest ” Lew Newmark: My Domestic Life Television ” episode below…

It is turning into another long week at the job, but as I said yesterday from my Facebook comment, I really had something to look forward to for today..no I don’t mean another day at the job! :)

I had the nice experience of speaking with a gentleman named Keith who lives in Australia via Skype, which is a great way to speak to anyone local, long distance, or across a continent.

WAIT! There is more to read… read on »

Churg Strauss: The Mind Body Connection…Sometimes The Disease Wins

Posted by Lew on August 7, 2010

Hi everyone and good afternoon.

Yesterday I attended our company’s picnic event in Chester NY.

I actually did not want to go, but I was not going to give up half a day if I did not attend, so left a bit early from work, came home and showered to get the stench of the job off of me and then drove back to Chester to attend the picnic.

I arrived a little before 1 pm, after not being able to find the actual campground where we were supposed to be. Said my hello’s to those that I wanted to say hello to…so not too many hellos were said.

I found the eats, grabbed a hotdog and well cooked ( that’s WELL DONE ) hamburger and some bad cole slaw and a bottle of water.

I nursed the water.

WAIT! There is more to read… read on »

Churg Strauss, Prednisone And My Lack Of Teeth

Posted by Lew on August 3, 2010

I’ve come to realize that ever since I’ve been on prednisone, that I have had some serious issues with my chompers ( that teeth for the rest of you out there ) and here is just another of those things that makes the use of prednisone a double edged sword.

While the dreaded prednisone keeps my condition in check, it also seems to have this one really terrible side effect…it slowly but surely seems to just eat away at our CALCIUM!

Before I get to my teeth issues let’s take a look at one of the main things that prednisone can cause…

WAIT! There is more to read… read on »

Churg Strauss: Recovery Through The Mind Body Connection Part 4

Posted by Lew on August 1, 2010

Hi there and welcome to the fourth and final part in my series on Churg Strauss: Recovery Through The Mind/ Body Connection.

Before you read this final installment in my series, please read the previous articles in the series which you can find below through the following links…

Okay so this final part in my series is based upon Yaro Starak’s article titled How I Realized My Sense Of Self And Why It Changed Me Forever ” and I want to delve into just how important the role of  Faith or Spirituality can be to the Mind/ Body connection and Churg Strauss Recovery.

WAIT! There is more to read… read on »

When All Else Fails; Try Actually Eating Something!

Posted by Lew on July 28, 2010

Ever watch the Travel Channel show ” Man Vs Food ?”…I wish I could eat the way that guy does on his shows..I couldn’t eat a third of what he puts into his stomach anymore.

Ever since I was diagnosed with CSS ( and possibly just a little before that ) I was having issues with my stomach.

But let me preface the above statement…I live with Acid Reflux, yeah like living with CSS wasn’t enough!

And just before my diagnosis of CSS, I was suffering from the acid reflux due in no small part to my having to take the wrong medication for the condition. I usually take ” Prevacid ” to help combat the effects of acid reflux, and up until January of 08 I was doing just fine with it, until my insurance would not cover the ” type ” of prevacid that I needed to use any longer.

WAIT! There is more to read… read on »

Churg Strauss; Mood Swings And Prednisone Use

Posted by Lew on July 27, 2010

What? What do you mean I’m moody?! I’m not moody…I’m on Prednisone!

Don’t laugh at the sentence, as this is something that some people experience while on prednisone.

At least for now, prednisone is the main ” Go To ” drug of choice when it comes to treating Churg Strauss and some of it’s other interesting complications such as Asthma.

From this point forward in this article, I am speaking to my own expierence so take this just for what it is…

I have been on this great little drug for better than two years now as I was actually using it to a much lesser extant a few months before I was diagnosed with CSS for the treatment of my Nasal Polyps, one of several pre cursors I have lived with over the years before my eventual CSS diagnosis and while I have always been somewhat ( stop laughing! ) moody, I have noticed that prednisone only makes the issue worse. But before I speak further to this let me just back this up just a bit with some other folks ( who will remain anonymous ) experiences in this area… WAIT! There is more to read… read on »

My Second Year Of Living With A Rare Vascular Disease: Churg Strauss Syndrome Part 4

Posted by Lew on July 21, 2010

Hi There Everyone.

Sorry to get to this last series article so late…but I’ve been a very busy ( young? ) man as of late and unfortunately the blog has had to suffer just a bit and I apologize for that.

This coming Sunday is my birthday, and I turn 53 and this will be the first time in five years that I am actually looking forward to this day.

Over the past five years this ( and actually when I take a closer look at the day, Memorial Day ) has not been a very happy day at all. Let me explain just why this is the case..

In 05, on my 49th birthday two things would occur….

WAIT! There is more to read… read on »


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