Lew’s Journal
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8/29/2010
Okay, well I have managed to send out a few emails to one Jane Dion of the CSS Association. No responses back from Jane as of yet…I imagine she may be on vacation with family so I have to try again this coming week. As far as my contact with that person in that council woman’s office…nadda as of yet…so I will have to get in touch again with this person. I did go down to my local VFW lodge here in town and got an application to join. I asked two guys there if they do fund raising events and of course they do…then asked the all important question…did they ever here of my disease Churg Strauss Syndrome, and of course I got the usual look of ” what the hell is that ” and the always popular ” Never heard of that ” so at the very least I got my foot in that door, and I will take full advantage of it also.
Wish I had more to report, but I’ll take anything at the moment…
Lew
8/22/2010
Evening all.
Again, it would seem that it’s been quite a while since I have posted anything on this page and now I will have a lot to talk about here for some time at least so let’s get started with…fundraising.
Okay, so first off let’s just say this outright…I do not expect this to be easy…as with most things in my domestic life and I’ll tell you why…
First, I do not belong to any organization of influence what so ever.
I don’t belong to the Lions, The Rotary or the Kiwanis Club, so at this point no help from them.
What I do have so far is just one contact…a local councilwoman who contacted me last year after that article was written in the local paper about me.
I’ve been in touch with one of the council woman’s staff members and this person is supposed to get back to me hopefully with some information that may hopefully get me a leg up on the process.
I know it’s not a lot, but for me, at least it’s a beginning.
As far as the blog is concerned, by the end of next month I should have the forum for the blog up.
And of course I’ll start on the next edition of the newsletter.
Well that’s it for now, until next weekend anyway okay.
Lew
2/23/2010
Evening everyone.
Well, as I’m sure some of my readers are aware, I’ve been having issues with my place of ” Employment Hell “ for quite sometime now. I’ve been at my job for 17 years now, and I’ve been in my present position there for better than three years now, and after my boss moved onto greener pastures, the complexion of the department kind of changed over time, and has caused me nothing but stress and nights of not sleeping properly ( of course a lack of raises, and another year of furloughs certainly has not helped in the area of rest either! ) but after finding a note on my desk yesterday which was just very unprofessional and really upset me, I have asked to be moved back downstairs to production, and of course this is probably not the best thing to be done considering my asthma condition and the neuropathy issues with my tootsies ( that’s feet for the rest of you out there ) and so I have to wonder if I haven’t went from the proverbial frying pan into the fire. And I wound up waking up early this morning ( around 4 am ) and was just totally congested, just feeling really shakey, and actually had a bit of swelling in my feet, so I wound up taking the day off, and I just have to wonder if my feeling ill has a direct connection to the stress I’ve been dealing with for such a long time now ( and especially ) over the past few weeks…
2/19/2010
Hi everyone.
Well, so far this week is turning into kind of a bust as far as the study goes due to my recurring cold issues. About two weeks ago I came down with a cold that had spread through my workplace ( that would be OFFICE ), and I guess due to my continued lack of rest due to money and work issues, I haven’t really fully recovered from the original cold. So, Thursday, I skipped taking the supplements, as I wanted the cold meds I was taking to work without being further hampered by the meds I already take. I will probably wait until tomorrow before I take them again.
2/13/2010
Good afternoon everyone.
Okay, so today is day 1 of a two month ( or possibly longer ) case study I am undertaking to see if there is a ” Natural Remedy For The Cure Of Asthma “. To be fair, the only thing I did today in beginning this case study was to take the supplements, and they were not taken at any particular time of the day. Naturally there will be other factors that will have to be talked about in the course of this study, so please stay up on things as I post them, and I will let everyone know when there is a new post here…which might be everyday or every other day due to certain time factors involved.
So here’s to my and hopefully your health also!
Lew
1/11/2010
Morning everyone. Over the past week I have been having some issues with nasal and chest congestion. Waking up in the morning ( doesn’t matter what time of the morning, as I’m writing this after am and I’ve been up dealing with this for more than 20 minutes now ) and one of the major factors I feel is effecting this is my drop in mgs of prednisone, as I have been at 12mgs since the beginning of the new year now. I will continue to monitor this and will for the moment not try to drop this dosage any lower.
1/09/2010
Hi everyone. Woke up today and was feeling terrible. I was all congested in my chest, and I have been trying to blow my nose all day..and it’s only 11am at the moment. I was also feeling kind of weak, but at the moment I do not feel that bad. I have to wonder if using a ” Humidifier ” in our bedroom is really such a great idea for me. We started to use it last week and this is the first time that I woke up this congested in quite a while. Well, time for the wife and I to blow our nose’s some more.
Lew
01/05/2010
Wow! Does it just look weird typing that number in or what! Well, as I have told everyone I would be starting to regular updates here on this page and so I begin today…by not feeling too great. More of a ” Stomach ” issue due to nerves, but I’ll talk about that more later this evening. Getting ready to go to work, so I’ll see everyone this evening.
Lew
Update 1/5/2010
Well, the stomach issues plagued me all throughout the day, and to be honest I haven;t quite decide if the issue is all stress related or if it might have something to do with my ” Acid Reflux ” or my ” CSS ” or if I might just be having something all new occur…I guess only time will tell…But, I will be in bed by 10pm tonight and hopefully asleep by 10:30 to get some decent sleep. See you all later everyone. Lew
9/28/09 Update:
Hi again everyone. Well. my fast is over…and I did get that slice of pizza at around 3:pm ( but without the sausage! ) and I am pleased to say that I had no ill effects from CSS today during my fast. I will say to everyone that I was a bit concerned about taking Prednisone on a pretty much empty stomach, but nothing occured. So this ends this post about fasting, and I have to say I’m not sure if I’m happy or a bit annoyed because in the end I really had nothing to report about other than the usual stuff that might have occured whether I was fasting or not today. Well, on the upside, there is a dinner that awaits me as soon as it is finished cooking. Lew 
9/28/09
Good afternoon. Wow, could I go for a slice of Pizza with sausage right now. Okay, honestly, I really do not have a lot to report here…and I thought that I would. Maybe today is just one of those better days for me all in all as far as my CSS itself goes. As I stated last night, my last bit of ” food ” intake came at around 11:30 with some water and a baked soft pretzel. Right now, I’m on my second cup of coffee, and this will be the last of that, as I do not want any issues with trying to go to sleep tonight. While I am hungry right now, I do not have the usual attributes that have been associated with past fastings…mood swings, bad temper ( although some who know me would not know the difference here ) sluggishness…no at least today, I am not experiencing any of these. Well, that’s it for now…maybe something interesting will happen before dinner…dinnnneeerrrr!!! Lew
6/29/09
Good Morning. Well, after a mixed bag of a weekend, I thought that I should take a blood sugar reading and it falls right in line with previous readings. It was 90mgs, and of course will take the next reading before heading out to work. All in all, health wise at least I feel pretty good.
6/24/09
My day began VERY Early this am…3am to be exact. Find myself waking up around this time quite often lately. My sleep patterns are just sucking big time. Anyway, after using the bathroom, tried to go back to sleep right away and this did not happen…stomach issues ( which I always worry about, as this is what got me back into the hospital the second time ) last year after being out for just a week. My thought here is that I took in too much dairy over the last two days…two days in a row of ” Chicken Quesadillas ” . Anyway, not a big breakfast this am to be honest, and probably will take it easy today. Some cereal at work, and salad and ” Mussel ” meat with some ” Thousand Islands ” dressing for lunch. Not sure what dinner will bring, but I will be avoiding Cheese. Lew
6/22/09
Good Morning.
Haven’t written anything new here in a few days. Saturday, the 20th was just a terrible day all in all, at least as far as my being able to get any work done due to my being ” Fuzzy ” upstairs for most ( if not all the day ) and I was also having digestive issues which made things all the worse. Plans to have a pre-Father’s Day taste from Chili’s was pretty much just out the window. Yesterday, however was a decent day as far as my condition in general was concerned. I got some yard work done, ate very well, was able to get a bit of online work done ( mostly with this blog and some things with the Vasculitis Association ) and I even read a few comics too. Today, I went back to my basic routine, taking my blood sugar ( which so far for the first intake was 93 ) and have of course started to take all my meds. More later… Lew 6/17/09
Morning.
Well, I decided to see what my blood sugar was looking like this morning…something I have not done for quite a while now, and surprisingly it was not high or low, it was right where it usually was which was 92, taken at 5:50 am so of course I have to do a followup before I head out the door. Do not expect that result to be too off either. My breakfast consisted of a cup of Kona Coffee, an English Muffin, and three pieces of Morningstar Farms Breakfast Sausage…those of the Non-Meat Variety, and of course my usual armory of pills…for my health, and I’ll top it off with a small amount of juice. More later today. Lew
6/16/09
God, just shoot me please. All I want to do is sleep please…I am still feeling very tired this morning..five days now of feeling so tired that I do not want to get out of bed. Have to get myself going today as I have to get to the job and function no matter what. It will be fun indeed.
6/14/09
Writing this at 4 in the afternoon. I have had a terrible day today…everything is acting up, the condition itself has sidelined me from doing a bit of business with my daughter. I feel very weak today, have had the ” Runs ” all day, and I have the pins and needles in my fingers as I type this update, along with lots of abdominal gas pain. And of course there is a commercial for ” Chili’s Fire grilled Casadias “. Anyway, even doing this update is taking lots of effort to write and just top complete. This will probably be the only work I get accomplished today. Lew
6/12/09
Okay, I skipped a day here in my journal, which I said would probably happen, so let’s get to today’s journal update.. Today, I had a lunch with a vendor from my job, but this person is also someone who I follow and who follows me on twitter, and we talked mostly about me and my condition. This person’s name is Evan, and he just made my day today, as I really do not get to talk much about my condition to others outside of this blog.I spoke, he listened, asked questions when appropriate and just made me feel like any other person today…which is sometimes just what I need to help me get through my days…and of course again the sympathetic ear made a world of difference to me today. Thanks Evan for making me feel like everyone else!
6/10/09
Woke up around 5:15 this morning, but did not get out of bed till 5:40 as usual. Feel a bit bloated this morning, and of course the usual coughing up flem. Already took most of my meds, just waiting to take my 35mgs pred dose. More here this evening I think.
6/9/09
Morning. It takes approximately 30 minutes just for me to get myself regulated ( that’s the term I will use in reference to my just getting myself started with regular routines in the morning on any given day ) and this time can include my needing a breathing treatment to just trying to get the sand out of my eyes. Of course, my sleep problems do not help this process at all, as it took me better than a half hour last night to fall a sleep, in between coughing fits. Almost an hour later, I’m first settled and ready to go now, problem of course is that it’s almost time to start getting ready to head to work soon.
6/8/09
Morning. Today I go to see my Reumy doctor. More blood work, more discussion about my condition, and I believe that I will also have some blood drawn for another INR test. Sleep last night was elusive at best, but some coffee will hopefully bridge the gap somewhat.
6/7/09
Another long time between posts in my journal. As I stated earlier this week, I will start to do regular updates here, more than likely they will not be everyday but probably go with an every other day type of posting, as there is not always something new and exciting going on, but as I have come to find…time decides that…not us lesser beings. 4/24/09
Wow! Been a while since I wrote anything here in my journal. Anyway, after almost a year of being off of Prevacid, I finally got a new prescription for the drug and I have been taking it since Monday, and have noticed some improvement as far as my stomach problems are concerned. I have not gone off of the Nexium yet either. I take that later on in the day for the moment, as like the Prednisone, I want to just wean myself off of the Nexium, so that I hopefully do not experience any ill effects right away from going off of it.
1/23/09
Yesterday was not any real big day to talk about, as I did not have to take my Blood Sugar readings. Today’s first test result was 96mgs. Still have to do my ” Inspirational Read ” from Joel Osteen. Breakfast was ( and I’m still eating ) Coffee ( I have to take a pic of this coffee mug ) a bowl of ” Honey Nut Chex ” and a ” Butter Rum ” muffin ( and no this is not a cake derivative ) and of course what ever I have as a second breakfast at work…and yes, still no donuts or other cookies!
1/21/09
As my morning continues to get away from me…my blood sugars are… 5:40am-84mgs and at 9:20am ( and honestly this is a very late read ) 138mgs, right around the number I like to be at. Not to certain about the last reading due to the time it was taken. I will take readings again at dinner time.
1/20/09
Good Morning and Welcome to ” Inauguration Day !” My first ” Blood Sugar ” test was actually where I’d like to find it in general. 94mgs Okay, truth to tell, I’d rather stay home today, as this is going to be one of the most significant days in our history, but I cannot let my buddy Lissette do everything at work by herself, so unfortuneately I will have to go to work. I’ve done my inspirational read this am ( thou I will admit, that I really did not absorb it as I’m feeling pretty beat this morning ) and having my breakfast. More later.
1/19/09
Hi everyone. Okay, week three of this experiment begins and it starts off okay ( no, not great or fantastic ) as my first blood test is low, at 5:30 am and I just got done ingesting the last of my ” First Breakfast ” which consisted of a cup of coffee and a bowl of oatmeal. Won’t take the next test till 8am. Still have to do my ” Inspirational Read ” in just a moment, so this will have to be all I’m posting for the moment. Catch up to everyone later. Lew Update:11am, just realized that I never was able to take other ” blood ” test, so will have to wait till this evening and take before dinner and bed.
1/18/09
Good Morning. Up at 6:45 am and got the day going. Sugar was at 78mgs this morning for a first read. Still drinking my first cup of ” Joe ” and will only have one more large one a bit later along with some more breakfast stuff after another sugar reading, coming up in just a bit. I will be ingesting more straight water today than yesterday.
1/17/09
Okay, today I am taking a break from really writing a bunch of stuff here in my journal. Just the basics today. Sugar a bit low this am, so I upped my calorie intake a bit by having two pieces of banana bread, which pretty much killed the loaf. Lunch was a bit of a cheat as I had a slice of Pizza..wasn’t really too hungry and dinner I had a ” Turkey Club ” sandwich on sourdough bread, with a few ” Trisket ” crackers and some juice. What I did that I shouldn’t have done…drank more ” Coffee ” rather than just straight water.
1/16/09
Morning. It’s Day five of my second week of this experiment about ” A Positive Mental Outlook ” and so far I have done the usual things that need to be done. Blood Sugar was 87mgs. I did my ” Inspirational Reading “, I also did my ” Morning Affirmation “, and aside from doing this update I’m having my usual breakfast.
Talk to everyone later
Lew
1/15/09
Good Morning Everyone! I have to say that sometimes 5:30 just comes around way before I’m ready. Anyway, I did take my ” Blood Sugar ” ( good going Lew ) right at the get go. Results..77mgs and will take again before I hit the door. I will do my daily read in just a bit. All in all, don’t feel too bad this am. Lew P.S. I did the rest of yesterday’s update as a regular post..but you already knew that right?
1/14/09
Good Morning. I feel a bit better than yesterday. Still doing things out of turn at times. Forgot to take my ” sugar ” test first thing this morning. And a few other things before I head out the door to work. I’ll catch up a bit more here later today.
Lew
1/13/09
Okay, a few things to speak of very quickly this am…woke up this morning feeling very bloated, tired and just generally feeling out of sorts. Sleep was very elusive last night at best, and was doing much better yesterday around this time. So, what is good so far…My blood sugar was low at 77mgs. I did do my daily ” Inspirational Read “, and I’ve added something else for when I first rise in the morning…adding a ” recitation ” or ” Thank You ” if you will for being given another day…although the way I’m feeling this am, that was a bit lackluster to be honest. More to come later, as the morning is already getting away from me so have to end this sooner than I’d like and have some sort of breakfast.
Lew
1/12/09
Wow is it really the 12th of this month? Anyway, first Blood Sugar at 5:40 was 106mgs. I will take another reading at around 8am, due to my finishing breakfast just a little while ago ( it’s almost 7am now ), and have to take my next dose of meds…prednisone 30mgs, another 10mgs this evening. I did indeed read my ” Daily Inspirational ” from Joel Osteen, and I added a little something to my ” daily Ordered Routine ” this am, and I’ll talk about that later.
Lew
1/11/09
Hi Everyone. Today ends the first full week of my experiment ” A Positive Mental Outlook ” and I will have a regular post done later today just going over my thoughts and observations for the first week. Took my Blood Sugar this morning at 6:15am and it was 130mgs. After a breakfast of a Large coffee a Quaker Oatmeal ” Apple & Cinnamon ” pack it had risen to 138mgs, still way within a good range as far as Diabetic Sugar goes. No ” Joel Osteen ” message in my email box as of yet, so I will have to use my ” Ipod ” and probably listen to his podcast later today. That’s it for now, see you all later!
Lew
1/10/09
Morning!
Welcome to day#6! Okay, I did all of my usual stuff so far this am.. Blood Sugar Readings.. 6:45am 77mgs 8:15am 85mgs This reading was low I beleive due to the fact I had not really eaten anything yet, so I immediatly inhaled a small blueberry muffin. Took my advair Had my coffee ( the large ” Terminator T-3 ” cup thanks! ) which I’m still nursing as I’m writing this post and I do have to still read my inspirational message from Joel Osteen. Okay, that’s all for now everyone.
Lew
1/9/09
Good Morning All!
Order is good. So far this am, I have taken my ” Blood Sugar “, taken my other meds in some sort of order and all in all so far so good. Blood Sugar was 77mgs. I did not follow through thou with taking my other sugar tests in the evening before dinner, and I have to at least have it taken twice a day. And I did do some exercise before dinner, so all in all yesterday was okay.
1/8/09
Good Morning. Sleep continues to elude me, a possible side effect of long term use of Prednisone ( just my guess at the moment ) and I woke up again several times during the night. Routine is a good thing thou and I am getting into a basic routine of things that need to be done every morning in relation to my ” Positive Thinking ” experiment. Have to test my ” Sugar ” now so I’ll see you all later.
Lew
1/7/09
Well, sleep last night was pretty much a repeat of the previous night, but do not feel too stressed this am. Didn’t get myself going this morning until 5:30, but I am starting to get into a routine but I do need to get back into the habit of taking my ” Blood Sugar “. I will take my kit with me and test before lunch and dinner. I also read my little bit of inspiration this morning…even thou it was actually for yesterday.
Lew
1/6/09
Hi Everyone. Woke up this morning at 4am with a breathing problem due to my Asthma. The house felt like it was boiling again. Wound up taking a couple of hits on my ” Albuterol Puffer ” for some relief. Checked my email this am and no message from Joel Osteen as of yet, so I will be taking my ” Amazon Kindle ” with me this morning in order to read a chapter of Osteen’s first book, ” Your Best Life Now ” for a bit of inspiration. Plan for this evening…some sort of exercise, dinner, reading and a bit of inter net blog work in our family room with the fireplace is going…going to have a bit of nasty weather tonight as reported by the news just a little while ago so I intend to be warm, toasty, and comfortable.
Lew
1/5/09
Well, it’s almost 7pm, and my day is pretty well finished. To finish my first day of this experiment I did a bit of exercise which consisted of doing crunchs for about 12 minutes ( I know this really doesn’t sound like much, but I have to start with some sort of a referance point to look back at at the end of the thirty days. And I will take a bit of time to do some reading and relax.
Lew
1/5/09
Wow! I did not realize just how long a time had lasped between posts in this area of my blog. Well, I have to be honest here and say that this is not the best start I could have hoped for with this experiment, as I woke up several times during the night, and when 5am finally, mercifully came around, I was awake, tired and sweaty. Felt like my wife Sue had raised the thermostat to 100! Of course she did not, it was just me. I was actually a bit disoriented, felt a bit bloated, and just did not feel great overall. This whole thing took me out of my game plan just a bit this am. What I have done so far is follow a basic morning routine, and as the days go by, I will add a few things to the routine to hopefully enhance things a bit. More on this to follow in the regular posts on this blog. Lew 10/31/08 Haven’t posted here for a few days as you can tell. Well, my asthma has again raised it’s ugly head yet again, and with that my nasal problems have begun again, so I have been trying to stay away from dairy products ( with very limited success I might add! ) and so I wound of at my Doc yesterday evening for a checkup. They had to draw some blood again, but not too much this time ( I hate needles! ) and he put me on avalox for a ten day stint, and I have to go tomorrow to get a chest X-Ray. Yesterday was also my Mom’s birthday…the first year that I am without her now too. I lost my Dad back in 05, and she just passed away last August…it still hurts a lot, even thou a year has passed. Anyway, the sugar’s been holding steady, but now I can’t find my test kit. It’s gotta be somewhere in the house…just not sure where right now. 10/20/08 Hard to believe that it’s almost the end of October already…it just feels like Sue and I were just arriving in Maui! Weather in the 80′s and just beautiful everyday when we were there…now we’re back home and of course it’s fall here in upstate NY, and the leaves are changing, along with the tempetaures. Well, yesterday I had to try and finish planting those bulbs that I bought last week, and again I was just a wreck after this little endevour, and I still did not plant all of the bulbs either. So this morning I woke up still kind of sore from yesterdays little project, but so far everything else is pretty much fine. Waking sugar was 109mgs. Sugar taken again @8:15am 95mgs-never had a reading this low as far as I know of. 10/17/08 Was up around 5:15 this am, but didn’t get out of bed till almost 5:30. No sugar test today, and the right foot is still being a pain in my A**! Okay, it’s my Bagel day and I was a bad guy and just had a cup of coffee, sucked down my Nexium pill, and went on my semi merry way to get my bagel and head to the job. it will be a busy day today so this will probably be all I’ll be posting about here today in the journal. 10/16/08 Hi there. I have to wonder ( and I will ask ) if CSS acts like a COLD, because it just seems to me over the past few months ( well since my diagnosis in June ) that like a cold, my CSS seems to get worse in the evening…more tired, more achy…by the time I usually make it home I feel like I’m ninety years old…LITERALLY! Anyway, took my sugar this morning, and it was 119mgs, and I was a good boy and actually took my test kit with me this morning and I tested at 90mgs at around 8:15am ( of course the fact that I only had a large cup of Joe ) for breakfast( again, I’m not the most consistent person in the world, and I should be ingesting a bit more than this! ) probably had an effect on the reading..and tomorrow probably will not be different as it’s Bagel Day…but I will try to have a bit more than coffee before I leave for work and stop for that aforementioned bagel. 10/15/08 I find it kind of funny ( if not downright Ironic ) that right after seeing my Nephrology doctor, that the very next morning I have a problem with a different body part ( namely my FOOT! ) that is related to the Churg condition, but is a separate issue that he would not be dealing with anyway. I have to find out more about this crazy little thing called Neuropathy ( sorry Queen ) for that blatant ripoff, and what different aspects might present themselves, because as of now, I still have the pain ( which I know I did not really go into details about yesterday ) when I walk on the right foot, and while the ” knot ” isn’t there anymore, the residual pain from it is. I took my sugar first thing this morning and it was 109, so of course I did not bother to take the kit with me to do the other part of the reading. I really am a jerk sometime ( well, maybe most of the time ) as I promised myself a new start and I’m back to the same old, same old…I have to stop this and get to doing what I should be again. 10/14/08 Woke up this morning with some real pain in my right leg and foot again. Thought I was past this nonsense, but apparently the dreaded Churg has other ideas. So I have decided to write a little piece here today titled.. Neuropathy Is My Friend! by Lew
Neuropathy is my friend. It let’s me know that I’m still alive by allowing me to experience pain in my lower extremities ( namely my feet! ) so that I know that I’m still alive and kicking ( of course I wouldn’t know this if not for the constant Heartbeats, stomach indigestion and so on! ) Neuropathy is my friend because it has become my best friend and constant companion…while my human friends and family are only around me for just a few ( several ) hours a day, Neuropathy is with me all the time! It’s with me when I wake, it holds my hand when I’m using the bathroom, and it tucks me in at night when I’m ready to go to sleep. Neuropathy is just the greatest, there is nothing else like it in the world, and I am such a better human being for having been introduced to it. It’s the bestest friend I have ever had…that’s my friend Neuropathy!
Well I have to say that I had a pretty interesting weekend to say the least starting Friday night. I did some work in the backyard yesterday, and of course saw a bit more of my physical limitations caused by Churg Strausse. Planting some bulbs and some roots for next year and the physical labor after two and a half hours just drained me for the rest of the day, and brought the aches and pains that go with this disease ( and possibly old age also! ). Well today is Columbus day, and all the kids and federal employees are off from school and work today, while I have to go to my job and my first appointment with my Nephrologist since this August, which was right before my and the wife’s vacation/honeymoon. I’ll have several questions to ask him so this will be an interesting visit. 10/10/08 Yesterday was Yom Kippur, ” The Day of Atonement ” in the Jewish Faith, so I did not do any posting anywhere yesterday and tried to do as little an amount of work as possible. Today it is back to the grind and posting so…I have decided to get myself back on some sort of a schedule that will get me back into exercising and other things and get me away from the sweets…it’s funny sometime the way we slip back into bad habits that we know is just not he right thing for us to do, but being human we tend to slip back into bad behavior patterns anyway. Sometime in the future I will be looking to see if there is a specif diet that people with CSS can or should be following… Lew 10/8/08
Woke up pretty tired this morning, as I was up a bit late between watching the second presidential debate, writing about it over here, and finally getting to bed and to sleep by around 11:30. Have decided that I have to be a bit more strict with myself as far as a routine for doing things like taking my Blood Sugar, and asthma Medication goes. I haven’t felt too bad either yesterday, or so far this morning, so I will have to see what the day brings…but tonight is Yom Kippor, and I will try to do my usual fasting tomorrow in observance of the holiday…just not sure if I will actually be able to physically deal with fasting even for a few hours now with my condition, plus my change in acid reflux medication. We will see. 10/6/08 I belong to a group on Yahoo that deals with CSS and I decided to ask a question about flareups and if missing a medication for one day could effect my condition. To my surprise the resounding answer was yes it could, and I will do a seperate post about that later this week. The med I missed taking was Prednisone, so I will be talking about the dreaded Pred and it’s effects, good and bad. 10/5/08 Yesterday was a pretty fine day all in all with nothing unusual as far as my condition to talk about…that was yesterday. Today everything is wrong, from my stomach to my fingers, yes this is CSS at it’s best. Let’s hope that tomorrow is a better day than today. 10/3/08 Had my usual cup of Joe this morning, and waited till around 8:15 to have more food. Fridays are always Bagel days for myself and my work partner…so I always love Friday mornings. Didn’t take my sugar this morning either, but do not feel like it’s a big deal either. 10/2/08 Another day of enjoyment hopefully. Took my blood sugar this morning before my first sip of the sweet nectar I refer to as coffee, and it was 139. Got to work, took my sugar again and it was 122. Not a bad start to the day. Still seem to be walking better than I have been, even with the neuropathy. Thank god for small favors I guess. Started to have that ” tired/drained of energy ” feeling again last night, of course watching the Vice Presidential debate last night could have been a contributing factor there, but I’m not sure. Had a sort of three course meal last night consisting of Matlaw’s Clams Casino (had five of those small things ) a bit of salade, and finally a few (4) slices of Freschetta Pizza ( a new type whose name eludes me at the moment ) but it was a five cheese pie, that actually was not that bad either. Unfortunatly, I gather having four slices was a bit much for the digestion to handle ( of course ) and had some digestion and bloating problems for the rest of the evening. Called it a night around 10:30pm after the debate was over. 10/1/2008 I thought that today would be a good day to start this journal. Woke up around 5:45, and took my blood sugar just a bit after I had a sip of my coffee…not really the way that is supposed to work, but there is a lot that I do not always do correctly or in proper order, plus I did not take my test kit to work to follow up with my sugar after my breakfast. So far, not feeling too bad this morning all things considered. Noticed that I was able to walk today without any real problems from the Neuropathy in my feet. Didn’t make lunch, so had to go out. Had Mcdonalds, not the greastest of lunch meals in general, put as far as the meal choice goes…I picked the least of the evil meal choices and took the good ole #2…Two cheeseburgers, medium fries ( love Mcdonalds fries! ) and a medium iced tea, to go of course! Got home, and started to prepare my dinner, expecting to have a Tuna Melt & salade, but the salade had gone bad ( just my luck! ) so had to substitute “baked beans ” that were still laying around the fridge “from last weekbefore they went bad also. Took my meds( Immuran x2 thanks ) and my prednisone around 10:00pm, and hit the sheets around 10:30
